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Whenever a lessening of a physical power
occurs, it will always feel too soon. Expect this reaction. Perhaps by preparing
for it mentally, you can soften its impact.
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Accept yourself, your physical condition, and your fate as
they are at the present moment.
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Expect that its going to be harder and take longer to do
things. Be prepared to do things in ways that are very different from the ways
you did them before.
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Get as much help as you can when you need it.
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Dont stay preoccupied with your body or your illness. Recognize that your
body is not your total self, only part of it.
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Expect things to be inaccessible, unattainable, unreachable. When they are,
dont get too frustrated or angry. If you do, let it be short-lived.
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Expect stressful situations to occur as your illness
progresses or acts up. Develop an approach to managing your emotions during
these occurrences.
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Watch for emotional, spiritual, or behavioral regressions
when you are most vulnerable. Try to avoid, minimize, or stop your regression.
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When you are utterly frustrated or angry, express these
feelings. You dont have to be nice all the timejust most of the time.
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Grieve and mourn for yourself, not once or twice, but again
and again. Grieving is a great catharsis and comfort and a way of keeping
yourself composed.
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Make an agreement with your family and friends to remind
you when youre depressed, anxious, despairing, or lacking in composure that
you do not want to stay that way. Ask them for a compassionate nudge.
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After you have wept and grieved for you physical losses,
cherish the functions and the life you have left.
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Try to develop an inner emotional or spiritual peace to
balance the distresses of your body. You might begin by learning to accept
what is for you at any particular time.
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Expect to feel like a dependent child and an independent
adult at different times.
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At some point, be prepared to deal with profound
contradictory feelingsfor example, wanting to live and wanting to die, loving
others and disliking them.
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If you find yourself fantasizing that you are no longer
sick and have been restored to your previous level of functioning, stay with the
fantasy as long s it gives you pleasure. But return to reality when the fantasy
becomes painful or when it is otherwise necessary for you to do so.
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Come to terms with the fact that you will never again be
fully physically comfortable. Enjoy the times you are comfortable enough.
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Accept the past as past, without denying it or discarding
it. Reminisce about it, but dont live in it. Learn from it, but dont
punish yourself about it or continually regret it. Dont get stuck in it.
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Learn to forgive yourself and to forgive others. Ask for
forgiveness from others. Forgiveness can soften the heart, drain the bitterness,
and dissolve your guilt
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All the work you have actively done on yourselfall the
experiences you have had in your lifecan be used to maintain your composure.
You have these resources. Draw on them.
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Be occupied with or focused on things and issues that are
of interest, importance, and concern to you. Remain passionately involved in
them.
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Resist the temptation to think of yourself as useless. It
will only lead to depression. Find your own ways of being and feeling useful.
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Dont assume that its too late to become involved or
to redirect your interests.
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Take in a much joy as you can whenever and however you can.
You may find it in unpredictable places and situations.
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Keep your heart open for as long as you can, as wide as you
can, for others and especially for yourself. Be generous, decent, and welcoming.
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Recognize the difference between what you want and need.
Your need to feel connected to other people is as vital to human survival as
food, water, and shelter.
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Talk openly about your illness with those wholl listen.
It will help them cope with their own vulnerabilities as well as your own.
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Maintain and continue a support system, individually and
collectively, of people who care about you and vice versa. Do not make demands
that others are not ready or willing to fulfill. You may drive them away. Accept
their refusal graciously.
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Know that your friends and family may see you as less
incapacitated than you are because they want you to be better. They have
this need because they care about you. Accept this, while trying to convey your
current reality without imposing it on them
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Let others affection, love, concern, interest,
admiration, and respect be enough to keep you composed.
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Be loving, compassionate, and gentle toward yourself.
Befriend yourself. Do not put yourself down or criticize yourself continuously.
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Find ways to maintain your inner privacy even when your
privacy is being invaded by external necessities.
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If you are ill, you can experience more freedom to be who
your really are and want to be because you now have nothing to lose.
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Try to compensate for the loss of control of parts of your
body by increasing control over your mind and emotions.
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Be a witness to yourself. Act as an observer to your own
physical, emotional, social, and spiritual states.
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Accept your doubts about your ability to achieve any change
in your emotional state. But keep trying. You might be surprised.
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Be hopeful but not foolishly
hopeful
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If possible, find and develop a spiritual connection and
practice that comforts you
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Find what is divine, holy, or sacred for you. Attend to it,
worship it, in your own way
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Seek answers to eternal and ultimate questions about life
and death, but be prepared not to find them. Enjoy the search.
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Entertain the thought and feeling that the distance between
life and death may not be as great as you think.
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Be grateful that you have been given the time to learn how
to die.
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Include one or more friends in your spiritual search. You
might find the path to spiritual connection less difficult.
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Learn how to live, and youll know how to die; learn how
to die, and youll know how to live.